Who else can help me care for my chronically ill child?

When friends and family members offer to stay with your child or children so that you and your partner can enjoy a night out, find a way to say yes, even if you have to teach the person about medical equipment or drugs.In New York, where I live, there’s a directory of agencies, programs, and services such as day camps, child care, respite and after-school programs, health care, family support, parenting programs, counseling, and many other services. It’s called “The Comprehensive Directory: Programs and Services for Children and Youth with Disabilities and Special Needs and Their Family in the Metro New York Area.” The state also has the Office of Mental Retardation and Developmental Disabilities (OMRDD), which offers programs, services, and a resource directory.

Your state probably has something similar. Just do an Internet search on “resources for children with special needs” along with the name of your state, and I bet several helpful options will surface. From The Smart Parent's Guide: Getting Your Kids Through Checkups, Illnesses, and Accidents by Jennifer Trachtenberg.

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