Why should I question a diagnosis of Alzheimer’s disease?

The question “How sure are you that this is really Alzheimer’s disease?” may be the most important question you ever ask in your life. Most people never think to question a diagnosis of Alzheimer’s disease. If your doctor tells you it is Alzheimer’s disease, it probably is.

But an estimated 10 percent of Alzheimer’s diagnoses are incorrect, even with today’s improved diagnostic tests. Unlike cancer or other diseases that can be diagnosed with great accuracy under a microscope, there is no single definitive test for Alzheimer’s disease. Yet all of your future care and treatment options will hinge on this diagnosis.

Dr. Peter Whitehouse, an experienced Alzheimer’s expert and the coauthor of the book The Myth of Alzheimer’s, advises, “You should resist that label and its baggage. Ask, ‘What do you mean by Alzheimer’s?’” You have every right to know as much as possible about how this diagnosis was made.

This does not mean challenging your doctor’s personal wisdom or credentials. A good doctor will expect and welcome your questions, especially since total certainty about an Alzheimer’s diagnosis is impossible until an autopsy after death. Your brain is far more complex than any other organ.

Unlike livers or hearts, which are similar enough among people to make transplants possible, no two brains are alike. This makes it even more difficult to apply standardized tests to all brains equally.

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