How should I tell people about my Parkinson's disease?

At any age, it can be difficult to share your feelings with your friends. And it can be especially difficult if you’re diagnosed with Parkinson's disease when you’re young. Surround yourself with caring, loving, and nurturing family members, friends, neighbors, and coworkers.

Give yourself permission to eliminate people and activities that drain your energy. Be honest with your family and friends if you’re having a bad day. Explain that you may feel terrible in the morning but fine in the afternoon.

Don’t expect people to know what you are feeling unless you tell them. Your friends may not know what Parkinson's disease is and may not know what to say or do—so tell them. Also, tell your hairstylist, dentist, and customer service people (as appropriate) that you may shake, lose your balance, move slowly, or have difficulties speaking because of Parkinson's disease.

Ask for their help when you need it. People feel good when they can do something for someone else. You might also want to keep a few informational brochures in your purse or wallet because you never know who might be interested in learning more about Parkinson’s disease.

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